Life of the Rainers

William Thomas Rainer

This is our second born son. We are already so proud of him!

Will is sick. We found out this past Thursday. I went in for an ultrasound. The ultrasound did not have good news. Will has a condition called CCAM. He has a tumor on one of the lobes of his lungs.

I honestly am too exhausted to go into too much more detail. Since his lungs aren't functioning he is getting a build up of fluid and so am I (the reason for my huge belly). Will's tumor has pushed his heart into his ribs as well. This build up of fluid might also essentially cause him heart failure in the womb (still born). Will other wise seems to be in great health. His limbs, face, brain, vessels, arteries, ect are all working.

We have not been given too much hope for Will, but we believe in miracles. We believe that the Lord has a plan for Will's life and for our lives as well. We may not know what it is or totally understand, but we trust in the Lord's grace to get us through this.

We are trying steroids to try and shrink the tumor. If this does not work (we will find out on Monday) we head to Cincinnati to see specialists that work with this condition. This is a rare condition and not very many babies (20+) have been treated.

Jess and I pray for wisdom. We pray for strength. We pray we glorify God in this situation and make him known. We pray that we can still be the best parents to Canon through this tough situation. We pray this brings us closer to Him. We pray this will bring us closer to each other as a family.

I am on bed rest at the hospital as we speak. I am having pre term labor so I am here to stop labor and to keep an eye out on Will. Jess has gone home to stay with Canon for the night.

I love Will even though he may not meet me or know me outside of the womb. I love him and will fight for him the best I know how.

I am amazed at how the Lord has embraced me through this situation. Wow, what an awesome God we serve! I know some of the harder days are yet to come or heck maybe some of the most rejoicing days are to come (we believe in miracles), but I am thankful to be pregnant with Will! I cherish his kicks more than I ever have these past days. I love him! He is my child and will always be.

Please pray for a miracle! Monday will be a big day.

Today I am so thankful for - Jess, Will, Canon, my parents, my in-laws, family, understanding doctors/nurses that truly care, flowers, friends, friends who weep with us, honest conversations, phone calls, texts, emails, prayer warriors, smiles, laughter, tears, seeing healthy babies in the hospital, scripture, chocolate chip cookies, and the Lord's grace.

Rachel

(please don't post on our face book walls, you can direct message us)

One of my dear friends reminded me of this verse:

"The Lord is close to the broken hearted and saves those who are crushed in spirit. " Psalm 34:18